About the GENFI study and what is involved.
The GENFI study is aimed at people with one of the genetic forms of FTD and their first-degree relatives.
A typical visit would include a clinical assessment with a doctor, the collection of a blood and urine sample and some psychology tasks. We also carry out an MRI scan and a lumbar puncture. All your participation is voluntary, and you do not have to carry out all parts of the research.We also require you to identify someone who knows you very well to act as your informant. This is someone who will be required to fill out some online questionnaires on your behalf. The visit is usually spread over one day. Any costs related to the visit will be paid for from the research budget including a hotel and transportation.